I’ve been home three weeks now, but it feels like I haven’t had a minute to myself. Various doctors want follow-ups. My meds are constantly changing, so there are constant trips to the pharmacy as well. Many are wrong (written by various hospital docs) requiring calls to my PCP to straighten out, followed by additional trips to the pharmacy. My Nephrologist wanted me to see a dialysis educator as well. I’m resisting dialysis, but I want to keep everyone happy so I went. That was nearly a whole day by itself. Also, I’m in the process of getting on the kidney donor list, so there is an endless barrage of phone calls and letters (requests for information) that all take up endless amounts of time.
On top of it all, I’m not as healthy yet as I expected to be once I was released. I thought once the pneumonia was gone, I’d be fine after a few days recovery. I’m definitely better, but I’m a very long way from being back to myself. I’m tired all the time and could sleep 18 hours a day if only the phone would stop ringing. But things are starting to slow down enough to turn on the computer so hopefully I’ll be able to get my life back soon.